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Adrian is 8 years old and in 2nd grade. He loves exploring the great outdoors, laughing and playing with his little sister, cars, music & dancing, and french fries!
Adrian is diagnosed with a rare genetic disorder called Mowat Wilson Syndrome. He is 1 of 500 worldwide.
To support his walking and running, Adrian uses AFOs (ankle foot orthoses). When Adrian was 6, doctors anticipated hip reconstruction on both sides and possible foot reconstruction at 7 or 8 years of age. As time passed, Adrian's parents were able to reassess with more information about Adrian's development.
They decided to try 3 weeks of serial casting to help improve his ballerina walking and left ankle contracture (tightened and shortened muscle fibers).
The photos above show the progression:
1/29/22 - Week 1: Rough at first, and Adrian needed help just to be mobile around the house. But he is tolerating the casting well; we can already seen an improvement!
1/26/22 - Week 1: Neutral position. He has more balance and is feeling more confident to take steps on his own.
2/2/22 - Week 3: A little skin breakdown but overall the casting has greatly increased Adrian's ankle flexion from -5 to +5!
As you can see, Adrian today is feeling foot loose and fancy free!
Adrian's mom reports: "I can already see an improvement in his gait and overall heel-to-step pattern. With continued bracing, PT, and movement, we're staying confident this will prevent any future invasive surgery."
Adrian is so happy to be free of his cast!
"Shoutout to Karsti, Physical Therapist, at Tichenor Clinic and Rachel Thompson, MD at UCLA Orthopaedics for their knowledge and collaboration in finding the best solution for our Adrian!"
(And note the updated map to see if the redistricting process put you in a new district! Tichenor Clinic has moved from District 4 to 3. We thank Councilmember Supernaw for his wonderful support and thank Councilmember Price for her continued support of the nonprofit sector in Long Beach!)
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February's "Did you know?"
The phrase "I'm sick and tired of being sick and tired" was first uttered in 1964 by Fannie Lou Hamer, a civil rights activist. She also lived with multiple disabilities, including the long-term effects of polio. In addition to leading the movement of registering Black people in Mississippi to vote, she also helped establish farm cooperatives and banks for poor residents to have better food access, advocated for more federal funding for Head Start programs and housing, and helped form the National Women's Political Caucus.
We honor Fannie Lou Hamer this Black History Month!
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If you need an additional copy of an acknowledgment for a donation made to Tichenor Clinic for Children last year or need an itemized letter of your donations for tax purposes, please contact our Director of Development Stelet at firstname.lastname@example.org.
Love for our supporters this Valentine's Day!
Can you imagine a parent witnessing their child increase their mobility and independence (then learning how to support this at home)?
Can you imagine hearing your child say "I love you" with a push of a button on an assistive device?
Can you imagine a child with physical limitations on land experiencing the buoyancy of water for the first time?
Can you imagine the relief of a parent who struggles at every mealtime learning strategies to help their child expand their palate?
Can you imagine the pride and satisfaction of a teen having learned how to cook a meal independently, then cooking that meal for their family?
Can you imagine being a parent not knowing where to turn after receiving a diagnosis of a disability for their child? Then finding a group of people who completely understand and are happy to walk alongside you, supporting your new journey?
All of this happens at Tichenor Clinic for Children. All of this and more happens thanks to your thoughtful support.
Happy Valentine's Day to all our Tichenor families and all those who support Tichenor families to thrive!!